COVID19
Sharing a few links here that may be useful to patients.
Turn 2 us – benefits and Coronavirus
Complete guide to financial support during #COVID2019 and we will be updating it regularly. In addition, we have also updated our Benefits Calculator to reflect the latest DWP policy.
https://www.turn2us.org.uk/get-support/Benefits-and-Coronavirus
Covid at home – started as a way to share our early research regarding the COVID-19 pandemic. We were trying to write down for ourselves and our friends what to do when so many people were going to get sick. Much of what’s discussed here may be common sense to some, but we felt it’s still good to have some checklists and information for various stages of illness in one place. We consulted with nurses and doctors, but this site was created by the non-medically trained, trying to puzzle together what makes sense in our new normal. available in various languages https://covid-at-home.info/
Every mind matters NHS https://www.nhs.uk/oneyou/every-mind-matters/coronavirus-covid-19-anxiety-tips/
Mind https://www.mind.org.uk/information-support/coronavirus/coronavirus-and-your-wellbeing/
Blurtitout Foundation https://www.blurtitout.org/resources
Action for happiness https://www.actionforhappiness.org/resources
Link from The Christie hosptial Manchester about managing anxiety https://www.christie.nhs.uk/media/8758/1386-managing-anxiety-about-covid-19.pdf
Hair Loss Help at Home – Support during Coronavirus (COVID – 19)
A free an impartial money advice set up by the government https://www.moneyadviceservice.org.uk/en
A doctor shares the secrets of cancer survivors
A really excellent link to an article about advice for cancer patients and survivors.
A head of our time
Support group for living with persistent chemo induced alopecia.
Astriid
A charity connecting businesses with professionals who have long term health problems but who still have many skills to offer employers
Behind the Headlines NHS web site for unbiased and evidence based analysis of health stories.
Blossom Appeal
North Manchester General Hospital’s fund raising for breast cancer.
Breast Cancer Nirvana
New Zealand – Breast Cancer Nirvana providing support and inspiration for anyone affected by breast cancer.
Cancer Buddies Network
Online Forum and database matching you with someone else to talk to who’s been through your specific cancer.
Cancer Warriors
Advocating about cancer in the local community and fund raising.
Cancer Care Map
You can search for cancer support services in your area.
Cancer Central
This is a centralised resource; here to help you find support specific to your cancer type. Find helplines, counselling, insurance, skincare, respite, events and more; locally or online. We are a new and growing platform and at the start of this journey. Over time, with the support of our growing community, we will become the go-to place to find cancer support.
Chris Cancer Comnmunity
A unique partnership with C4C mobile will enable us to help people affected by cancer by donating air time/mobiles. This is designed to help with both the feeling of isolation and economic impact that a cancer diagnosis can bring. Just by using the network and selecting Chris Cancer Community as the chosen charity, 10% of your monthly spend will be automatically donated.
https://www.nhs.uk/change4life#PQ2KKCL5pcJIgTAQ.97
The Christie
A wealth of information on here.
Also see the video that I have a little involvement in under “Your feedback” 🙂
The Christie also run induction sessions for any new chemotherapy patients – please ask your Oncologist or specialist about these.
Community Cutz CIC – specialist salon service in Greater Manchester for wigs and hair advice for people dealing with the effects of cancer with hairloss and scalp and hair ailments. Contact Laura Moran tel: 01612925604 mobile:07934824380
Dr Foster Health gives details of hospitals and consultants.
Dr Greg Wilson Consultant Medial Oncologist specializing in breast cancer, colorectal cancer, SIRT and Targeted Liver Therapy.
Dying to Work
Giving terminally ill patients the right to work – if they so choose – the choice is the issue.
Equality and Human Rights Commisson – In employment
Useful information on Who pays for reasonable adjustments?
Dr Kershaws Hospice
They have a drop in for people affected with fatigue anxiety or breathlessness with chronic and advanced illness contact Pauline Brierley via email pauline.brierley@drkershawshospice.org.uk
E Cancer Insurance
USA – The Official U.S. Cancer Insurance Resource Center providing consumers unbiased information, consultation and free enrolment assistance.
European Organisation for Research and Treatment of Cancer
To improve management of cancer and related problems by increasing survival and quality of life. To eventually improve standard of treatment through testing ie clinical trials.
Episil – oral liquid for mouth pain relief by a protective film that forms within 5 minutes – contact email sharron.talbott-haworth@camurus.com
From me to you Lovely idea. Write a letter to a friend or family member with #cancer or #DonateALetter to a stranger in hospital via our #charity & help keep them connected.
Health Talk
Reliable health information. Patients’ real life experiences, shared on film. What people are saying about their experience of ill health.
Healthcare Travel Costs Scheme (HTCS)
Insurance With – created as the founder couldn’t get affordable travel insurance after a cancer diagnosis. They specialise in travel insurance with medical conditions. Mention you got the details from my web site.
A great resource for UK patients and I have used this many times for travel – highly recommended.
I want Great Care
Ratings and reviews from patients like you. NHS hospitals, GP surgeries, dental surgeries, doctors, dentists, nurses, physiotherapists, clinics, pharmacies, nursing homes, hospices, medicines and wheelchair services.
Jennifer Young Skincare
Specially designed product for cancer patients but anyone can use them – 100% natural and organic ingredients.
Law Works
Free legal advice for individuals
Look Good… Feel Better
The beauty industry supporting women with cancer.
MacMillan Late Effects Service – Complex Cancer late Effects rehabilitation service – A national service for people living with late effects from cancer treatment. Late effects are health problems which may arise from treatment for cancer. The Complex Cancer Late Effects Rehabilitation Service (CCLERS) supports people with persistent pain and reduced physical function, helping them to live well after cancer.
Maggies
Offers practical, emotional and social support to people affected by cancer. you can find a Maggies near you via the website.
Mission Remission is dedicated to life after cancer. It’s an interactive platform for cancer survivors to share experiences and discuss practical strategies for moving forward. Come join!
Twitter: @MissionRem
Facebook: https://www.facebook.com/missioningremission
Motability car and scooter scheme
Citizens Advice how to apply for a motability car
NAVCA
The national voice for local social action.
The national membership clarity for local infrastructure. Our network of local charities and community groups in England’s largest.
NCVO champions the voluntary sector and volunteering because they’re essential for a better society. Charges but does do FOC work.
The National Cancer Action Team
Useful information about hospitals.
Net Doctor
Answer all your questions – site has many experts, lots of information about all topics.
Not Another Bunch of Flowers
Thoughtful gifts to show you care.
Pamela Northcott Fund – “the right treatment at the right time for cancer patients”
Help if you are having problems with accessing drugs for your treatment and campaigning on behalf of patients for access.
Patient
Avoiding rogue sites – directory of UK health sites edited by 2 GP’s – supply evidence based information of wide range of medical and health topics to patients and health professionals.
Patients Like Me
Join free online – learn from others about treatments, symptoms etc, connect with people to share your experience and track your health over time which contributes to research than can help others!
Paying too much
A consumer website run by Eclipse Financial Systems Limited And a trading style of Eclipse Financial Management Limited for Financial Services Products that are regulated by the Financial Conduct Authority
Shine Cancer Support
The only UK charity that exists exclusively to support adults in their 20s, 30s and 40s who have experience a cancer diagnosis.
Simply Wigs
A family run business, who have the privilege of being the UK’s leading retailer of wigs, hairpieces & accessories.
Something to look forward to
Supporting people and families affected by cancer by passing on donated gifts and experiences. Our ‘gifts’ include such things as restaurant meals, hotel stays, spa breaks and photo shoots….the list is endless. Our ‘gifts’ allow people and families the opportunity to relax, recuperate, enjoy themselves and create positive memories together.
Suburban Turban
Stylish, comfortable headwear designed by milliner Nicky Smetham for women with alopecia or chemo treatment hair loss.
Sun Kisses Moon Hugs
Supporting children through grief, separation anxiety, divorce, illness or other traumatic situations.
The National Osteoporosis Society
The only UK national charity dedicated to eradicating osteoporosis and promoting bone health in men and women.
The Big White Wall
An annonymous digital service that supports people experiencing common mental health problems like depression and anxiety. Available 24/7 so you can express yourself freely and openly.
Untire
Beating cancer fatigue together – this gives patients and survivors the tools to reduce fatigue
Pre loved wigs for sale at affordable prices from £20 New wigs for sale from £40.
Winston’s Wish
Charity to support children, young people and their families after the death of a parent or sibling.
World First Travel Insurance
Travel specialists – mention you got the details from my web site
Working with cancer
Helping people affected by cancer to return to work – professionals who have all had cancer themselves – or had a profound personal experience of it helping people in the workplace.
www.yellowcard.mhra.gov.uk
The Yellow Card Scheme is vital in helping the MHRA monitor the safety of all healthcare products in the UK to unsure they are acceptably safe for patients and those that use them.
